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Walking and living independently with spina bifida: A 50-year prospective cohort study

Developmental Medicine & Child Neurology Jan 29, 2019

Oakeshott P, et al. - In a cohort of consecutive cases of spina bifida, researchers described trends in walking and living independently, followed-up over 50 years. A cohort of 117 survivors and/or carers was surveyed about every 5 years by clinical examination and/or postal questionnaire/telephone interview from 1972 to 2017. Data reported that the follow-up in 2016 and 2017 was 99% and there were 37 survivors aged 46 to 53 years and 79 deaths. Outcomes revealed that mobility decreased with age, possibly as obesity increased and health deteriorated in this unselected cohort. In contrast, partly because survival in the least disabled was better, the percentage of people living independently increased. Investigators found that living independently at the age of 50 was more common among survivors without a history of increased intracranial pressure or cerebrospinal fluid shunt revisions.
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