Self-reported late effects and long-term follow-up care among 1,889 long-term Norwegian Childhood, Adolescent, and Young Adult Cancer Survivors (the NOR-CAYACS study)
Supportive Care in Cancer Oct 07, 2020
Mellblom AV, Kiserud CE, Rueegg CS, et al. - Researchers investigated a population-based sample of Norwegian long-term childhood, adolescent, and young adult cancer survivors in order to determine self-reported late effects, long-term follow-up care, as well as factors related to receiving follow-up care. Using the Cancer Registry of Norway, the survivors were identified. This analysis included 1,889 responding survivors who had a diagnosis of childhood cancer (31%), breast cancer (26%), colorectal cancer (8%), non-Hodgkin lymphoma(12%), leukemias (7%), and malignant melanoma (16%) and had a mean age of 43 years at survey. The experience of at least one late effect was reported by 61.5% of participants; the most common effects were issues with concentration/memory (28.1%) and fatigue (25.2%). Greater chance of follow-up care in the multivariate model was noted in relation to lower age at survey, higher education, and increasing number of late effects. Overall, at least one late impact without specific follow-up care was reported by most of the participating survivors. Structured models of long-term follow-up are needed to guarantee sufficient access to care.
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