Preferences for self-management and support services in patients with inflammatory joint disease: A Danish nationwide cross-sectional study
Arthritis Care & Research Sep 02, 2021
Hammer NM, Flurey CA, Jensen KV, et al. - Patients with inflammatory joint disease (IJD) report a variety of self-management and support service needs, including 1-to-1 services, which are traditionally delivered as part of routine care, but also talks, physical activity, and educational and online services. Although preferences varied by age, gender, diagnosis, and disease duration, all subgroups expressed a strong need for assistance, with only minor differences in their top preferences.
A nationwide cross-sectional online survey of rheumatoid arthritis, psoriatic arthritis, and axial spondyloarthritis patients was used.
Six hundred sixty-four patients completed the questionnaire.
Younger patients expressed a greater interest in 1-to-1 discussions with psychologists or another patient, educational sessions, events, and online services, whereas older patients expressed a greater interest in researcher talks.
Women were more interested than men in 1-to-1 discussions with health professionals, occupational therapists' question-and-answer (Q and A) sessions, physical activity, and informational websites.
Patients with axial spondyloarthritis showed the most interest in the various services, while patients with rheumatoid arthritis showed the least interest, with statistical significance reached for discussion groups about IJD experiences, 1-to-1 discussions with psychologists or another patient, Q and A with another patient, stress/anger management, and online patient communication.
Patients with a short disease duration were more likely to be interested in 1-to-1 discussions with rheumatologists or nurses, organized discussions with experienced patients, and online services for patient communication and stories.
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