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Differences in outcomes reported by patients with inflammatory bowel diseases vs their health care professionals

Clinical Gastroenterology and Hepatology Feb 16, 2019

Pittet V, et al. - Using real-world data from a large inflammatory bowel disease (IBD) cohort in Switzerland, researchers compared outcomes between patients and healthcare professionals from scoring systems for Crohn’s disease (CD) and ulcerative colitis (UC), and examined the overall and individual level of agreement on signs and symptoms reported by health care professionals vs patients. Data from the Swiss IBD cohort were collected, starting in 2006, using 2,453 reports for 1,385 patients (52% female, 58% with CD). Physicians asked patients about signs and symptoms and recorded their answers during office visits. The best (if moderate) level of agreement was seen for a number of stools last week in patients with CD and nocturnal diarrhea in patients with UC. Investigators discovered that health care professionals appear to misinterpret patients’ complaints in a comparison of patient vs health care provider-reported outcomes in a Swiss IBD cohort. Patients self-rated GWB correlated with QoL scores, indicating that it is possible and relevant to report GWB in a single question, but can vary depending on how the data is collected.

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