Assessing symptoms, concerns and quality of life in non-cancer patients at end of life: How concordant are patients and family proxy members?
Journal of Pain and Symptom Management Aug 08, 2018
Hack TF, et al. - Using family caregivers as proxy responders is common where patients can’t provide information about their symptoms and concerns to health care providers, so the authors assessed the degree of concordance between patients’ and family members’ reports of patient symptoms and concerns at end-of-life. Sample dyads, including a mix of patients residing at home, in nursing homes, long term care, and hospice, completed the Patient Dignity Inventory (PDI), the modified Structured Interview Assessment of Symptoms and Concerns in Palliative Care (SISC), and Graham and Longman’s 2-item Quality of Life Scale. For 7 of the 25 PDI items, less than 70% concordance was seen. The lowest concordance (65.1%) was observed for the item “Not being able to continue with my usual routines.” Understanding discordance between patients and family member reports of symptoms and concerns can help minimize patient and family burden at end-of-life.
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