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The experience of hearing loss in adult survivors of childhood and young adult cancer: A qualitative study

Cancer Jan 28, 2020

Khan A, Mubdi N, Budnick A, et al. - Researchers interrogated survivors of childhood and young adult cancers to determine the lived experience of hearing loss among these individuals to guide survivorship care. Semistructured telephone interviews were performed with 24 survivors. Findings revealed three primary themes: first, the association of posttreatment hearing loss with isolation and feelings of exclusion, second, there is a crucial role of clinicians in affording survivors with education about hearing loss and hearing aids, and the third one was that deprioritization of hearing loss for survivors may happen as it is a reminder of the cancer history and is interpreted within the context of other treatment-associated late effects. Findings highlighted a crucial role of clinicians in starting the discussion about hearing loss with survivors in view of the value of hearing in maintaining social relationships, the availability of hearing care interventions, and the invisibility of hearing loss. Education about the importance of treatment may have implications for how survivors prefer to prioritize hearing loss and seek care.
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