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Racial and ethnic differences in communication and care for children with advanced cancer

Journal of Pain and Symptom Management May 28, 2020

Mack JW, Uno H, Twist CJ, et al. - Adults with advanced cancer show disparities in end-of-life care by race and ethnicity, researchers here examined the extent to which communication and care differ by race and ethnicity among children with advanced cancer. In this prospective cohort study of 95 parents (42% racial/ethnic minorities) of children with poor prognosis cancer (relapsed/refractory high-risk neuroblastoma), they surveyed parents about whether prognosis was discussed; likelihood of cure; intent of current treatment; and primary goal of care. Observations revealed limited parental understanding concerning prognosis across racial and ethnic groups; racial and ethnic minorities are disproportionately affected. Perhaps as a result, higher rates of high-intensity medical care was provided to minority children. They recommend including focused work to meet needs of minority populations in works meant to improve prognostic understanding.

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