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Quality of dying and death in patients with interstitial lung disease compared with lung cancer: An observational study

Thorax Dec 15, 2020

Koyauchi T, Suzuki Y, Sato K, et al. - Between patients with interstitial lung disease (ILD) and those with lung cancer (LC), researchers compared disparities in quality of dying and death (QODD) and end-of-life interventions. Employing the Good Death Inventory score, they evaluated the QODD of a bereaved family’s perspective via a mail survey. There were 361 consecutive patients who were analyzed for end-of-life interventions. Among those, QODD was analyzed in 167 patients whose bereaved families completed questionnaires. Findings revealed that lower QODD and poorer access to palliative care and decision making were reported in patients with ILD vs those with LC. Scores for "physical and psychological distress relief" and "prognosis awareness and participation in decision making" were especially low. There is an urgent need for additional attempts to enhance QODD in patients with ILD, especially in symptom relief and decision-making processes.

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