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Patients' experiences with extramammary Paget's disease: An online pilot study querying a patient support group

Urology Sep 16, 2017

Chung PH, et al. - This pilot study intended to demonstrate the heterogeneous care delivered to patients with Extramammary Paget's Disease (EMPD), a rare and lethal malignancy with poorly described treatment methodologies, by characterizing the clinical and pathological characteristics of an international patient support group. This research serves a novel view of the varied clinical and pathological details from patients treated across varying institutions and medical specialties. This research will hopefully educate providers of the overall disease process of Extramammary Paget's Disease and encourage the development of standardized treatment recommendations.
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