Health-related quality of life and distress of parents of children with avoidant restrictive food intake disorder
Journal of Pediatric Gastroenterology Jun 28, 2021
Krom H, van Oers HA, van der Sluijs Veer L, et al. - Researchers conducted this cross-sectional cohort study to measure health-related quality of life (HRQOL) and distress of parents of children with avoidant restrictive food intake disorder (ARFID). Parents of healthy (HC) and chronically ill children were used as reference groups. Eighty-five mothers and 62 fathers of 89 ARFID children (58% female, median age 1.9 years) were included in the study (response rate 68%). There were no differences in HRQOL between parents of children with ARFID and HC in 11 of 12 domains. The majority of HRQOL and distress scores of parents of ARFID children were comparable to reference groups. Because parents of ARFID children perceive a lack of understanding and support from the environment, professionals should recommend peer support through patient organizations. Furthermore, it is critical to provide professional assistance because parents indicated that they would like to speak with a professional about their situation.
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