An international collaborative standardizing patient-centered outcome measures in pediatric facial palsy
JAMA Facial Plastic Surgery Sep 26, 2019
Butler DP, De la Torre A, Borschel GH, et al. - Authors sought to generate a standardized outcome measurement set for the pediatric patients with facial palsy through an international multidisciplinary group of healthcare professionals, researchers, and patients and patient representatives. The study participants comprised a working group of healthcare experts and patient representatives (n = 21), along with external reviewers. Under the guidance of the International Consortium for Health Outcomes Measurement, seven teleconferences were conducted, each of these was followed with a 2-round Delphi process to develop consensus. Following the literature review, they included 83 papers for qualitative evaluation. The working group designed a standard set of outcome measurements including patient-, clinician-, and patient proxy–reported clinimetric and psychometric tools which are deemed essential to determining the outcomes most important to children with facial palsy. They emphasize acknowledging comprehensive outcome measurement as essential to appraising different interventions, facilitating benchmarking of clinicians, and organizing value-based reimbursement strategies in the pediatric facial palsy field.
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