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A population-based and case-controlled study of children and adolescents with narcolepsy: Health-related quality of life, adaptive behavior and parental stress

European Journal of Paediatric Neurology Jan 24, 2019

Szakács A, et al. - In young people with narcolepsy and stress among their parents, researchers examined health-related quality of life (HrQoL) and adaptive behavior. Thirty-seven young people with narcolepsy (aged 8–20 years) and their parents were enlisted in a cross-sectional exploratory quantitative study design. Thirty-one had post-H1N1 vaccination-related narcolepsy (PHV) and 6 had narcolepsy not related to PHV (nPHV). Furthermore, 40 age- and gender-matched controls (5–20 years of age) were also included. Compared to controls, children with narcolepsy have diminished HrQoL. Data revealed that parents of children with narcolepsy saw impaired adaptive behavior in their children and experienced high parental stress levels. The psychiatric comorbidity of all the study variables examined had a negative impact.

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