Zigler CK, et al. - Researchers created a valid health-related quality of life measure for paediatric localized scleroderma (LS) individuals and used a patient-centred approach to assess their content validity qualitatively. To develop items, they used previously gathered qualitative data from youth with LS and their caregivers. The investigation involved 17 children and adolescents with LS. In people > 10 years old, interviews supported readability, understanding of the items and appropriateness of the recall period. The patient-centred development of the outcome measure and direct feedback from LS individuals and their families supported content validity. Although the resulting patient-reported outcome, called the Localized Scleroderma Quality of Life Instrument, is an important first step, it should be further tested in a larger sample before implementation.